For-Cynthias For-Chester

Tuesday, March 16, 2010

When the Only Hope Is a Peaceful Ending

Jane Brody wrote “Jane Brody’s Guide to the Great Beyond,” which deals with death and dying in a more contemporary and personal way. In this article she details some of the story of saying goodbye to her husband of 40 years, after he was diagnosed with metasticized inoperable lung cancer.

The decisions Ms. Brody and her family made regarding her husband's care were humane and loving. My wish is that everyone who is experiencing this terrible scenario is able to provide such a comforting and supportive end for their loved ones. I would have liked Joey to be cared for in this way. It would have been a kindness to allow him to be cared for by providing him a safe and painless place to end his days. Sadly, we were not the ones making those decisions.

A Fatal Diagnosis, Followed by Goodbyes
By JANE E. BRODY
Published: March 15, 2010
This is a very personal story of living gracefully with a fatal diagnosis.

Friday, March 12, 2010

Uncle Lenny Doesn’t Live Here Anymore

This is a moving story about an Uncle who has Alzheimer's. My dad, Oscar had Alzheimer's. It was hard to tell if he understood us, or exactly what was going on inside of him during the last two years of his life. He wasn't a nice guy so a lot of conversations with him were mostly hearing him grunt at whatever you said, or anger. Which essentially is an Alzheimer's type of response. Maybe Oscar just had Alzheimer's his whole life.

Uncle Lenny Doesn’t Live Here Anymore

Sunday, February 21, 2010

Can I Just go to Florida?

Anger wells up in me like one of those big waves that crash on you when you’re swimming. I’ve been on a boogie board when a wave hits me, grabbed me, and turned me over and over smashing me down on the sand until it scraped the bottom with me. That’s what it feels like, this anger. It’s actually a friend. If I didn’t have this anger, I would be sad and I don’t think I could survive that. I want to feel that sand scrape me raw. It’s good right now to feel that anger. It keeps me sane.
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It’s July 2004. My partner and I are sitting in Joey’s living room listening to him talk about what he’s doing to help himself. We know he’s going to die. He tells us it might be a year, but we know that he knows it will be much sooner. I want to jump from my seat and scream, pull my hair out, kick and break things, stick hot forks in my eyes. I want to beat someone up. Instead, I just sit there and nod.

Joey has his own business; he’s a real estate appraiser. Business has been good. He is telling us that it costs him $1500.00 a month to provide health insurance for him and his wife. I know that he is barely able to work anymore and I’m worried. His wife hasn’t worked in years. They have no children. She’s just incapable of holding a job because of her dependence on marijuana. I really want her to be the one who is dying. She’s not dying though. She’s sitting next to Joey now, listening to him.

My sister in law is listening and talking. She tells us that Joey goes on the Web and talks to other liver transplant patients. She says she “doesn’t believe in that.” As if the Web is imaginary or the other people with liver disease don’t really exist? I’m wondering, what does she mean? She doesn’t like Joey to talk to strangers on the “computer.” Ignoring her is getting harder.

Joey starts to tell us how he’s been going to a psychiatrist to help him through his despair. He has also begun visiting a faith healer. As he is saying this I see his wife rolling her eyes and making that trashy, low life money sign with her hand. She is telling us that money is just flying out of the window. I am imagining myself flying through the air at her.  I push her down. Once she’s on the floor I choke and beat her. Then I kick her over and over again until she stops talking. My head shakes, I try to focus on Joey.

Joey continues talking. He wants to go to Port Charlotte, Florida to spend his last few months. He has even found a house he wants to buy. His wife is telling us she won’t go without making sure that everything is “wrapped up”  in Virginia, no matter how long it takes. She is concerned about her furniture and leaving any bills unpaid. She also does not want to live anywhere near my family who lives in Ft Myers. She is worried they might be too close and will visit too often. Joey tells us he won’t go without her and quotes the Book of Ruth.
During this visit I reach a breaking point. I know that I hate Joey’s wife so much that it will be difficult not to sock her in the jaw whenever I see her. This is it. With complete certainty a door has closed in my heart. That woman will never again be a part of my life once Joey is gone. I will wish her dead. It pains me that she is not the one dying. I am not sorry I feel this way. Joey doesn’t deserve to die like this and she doesn’t deserve to live.

Joey lived one more month. He never made it back to Florida. The day he died, I took one last look at his wife. She was Joey’s big mistake. I wasn’t going to add to it. She was out of my life.