For-Cynthias For-Chester

Wednesday, June 30, 2010

Count Up

Four years and three months
Five Easters
Five Valentine’s Day
Four New Years
Four Christmases
Four Thanksgivings
Four Halloweens
Four Labor Days
Four Fourth of Julys
Four Mother’s Days
There will always be a number since you left
The count up since you’ve been gone
Four years and three months
1551 days…1552…1553…

Thursday, April 22, 2010

Flowers for Chester

Chester Floyd Merrifield died on January 11, 2006. He had been ill the summer before with sinus infections; one right after the other. He was given ten rounds of antibiotics. The week before Thanksgiving 2005, Chester went to the dentist because his teeth were beginning to fall out! He was only forty-eight, so this was not a normal occurrence. His dentist sent him to an oncologist.

Chester was told at the oncologist that he had metastasized cancer of the sinuses (paranasal cancer). The cancer had spread to his brain and jaw and the treatment options were slim to none. He was given a short time frame to live and told to get his affairs in order. What does that mean? It must be astounding to hear that. “Get your affairs in order.” It makes no sense.

The day before he died, he went from room to room in his house and just looked at all his beautiful things. This was a real Chester thing to do as he was an artist. Not an “arteest” a real artist who drew on paper, painted on canvas, wood, and furniture. He was also a florist who made the biggest, most outrageously gorgeous flower arrangements in the Universe.

I think about Chester every day, but especially in spring. He loved forsythia, but for some reason he always called it “for-Cynthia.” I never did ask him why. My forsythia bushes are bright yellow right now. Their long tendrils are spilling over with a yellow so bright that it makes you blink. Chester would have loved these forsythia bushes. They were just babies when Chester died. They have grown and blossomed into big robust bushes that hang over my fence like an old friend draped over a couch.

At Chester’s funeral there was an incredible array of flowers. Some of his friends knew who he was. They sent arrangements that were worthy of the Queen’s foyer. Yet, there were some who clearly did not know or understand Chester. Flower arrangements with icky little displays, some with carnations even! In my stunning grief I found it difficult not to constantly cry. I am not a crier, however, this was one day when I just could not stop, no matter what anyone said. As I made the rounds of the myriad flower arrangements I came upon the saddest little basket filled with some sort of murky houseplant and a few carnations stuck around it. At the same time there was a velvet-like rose in the center of the arrangement. Through my tears I began to laugh. Then, I pointed to the basket and began to sob loudly. “If Chester wasn’t already dead, this basket would have killed him,”. The thing was, it was probably true!

Wednesday, April 21, 2010

Sunday, April 18, 2010

How Does This Thing Work

Have you ever wondered how people who have had unfair negative life events can go on with their lives? I often do. It is difficult to imagine being handed a life like those of some Haitians, then, on top of poverty, hunger, disease, lack of education, and abuse, you get an earthquake piled on top of you. How does that work for people? Do they run back to church and pray that God doesn’t hurt them further? On the other hand, is it God that has anything to do with such things?

My brother died in 2004, my best friend in 2006, and my father in 2009. These are pretty life altering events. However, I did not lose everything. I did not need to lie down and die, myself. I grieved, and still do. Sadness pervades some moments in my life, but overall, I am a happy person and glad to be alive.

I have put myself in the place of people in Haiti, or people with terminal diseases who have had other unfair major life events occur. How do they go on living? Would you not want to just lie down and let the earth swallow you up?
Whom do you blame? Whom do you forgive? It seems as if we all have to have a finger to point; it makes us feel better…then, of course, there is the matter of forgiveness. I forgive you, God. I forgive you, Who? What is there to forgive when a life altering disaster is caused by natural forces? How can anyone forgive that? So, if there is a God, why are the Haitians suffering so much and my fat ass is sitting in a new car eating cake and drinking Starbucks?
Am I ready to give up the Starbucks and everything else that I consider a luxury in my life? No, not really. Though I wonder why it is that some of us have so much, and some have nothing. Couldn’t there be something in-between?

Those are all questions I have no way of answering. I admit I have faith, and I believe in God most of the time. I would just love to know how this thing works, this life of ours…what are the forces that drive our fates? If you find out, let me know.

Tuesday, April 13, 2010

My grandmother stood on the tarmac. I could see her little white hankerchief waving in the breeze. She had on a pair of those black tie up old lady shoes, the ones you see in movies. Her dress was sheer cotton with pearl buttons up the front. I could see her crying and waving. My grandfather was behind the metal fences. His pained look was visible just behind my grandmother's right shoulder. They would only let one person into the loading area, so my grandmother was the one who walked us to the plane.

I had no way to know that I would never see either one of them again. In my childish excitement, I only cared about the plane and all that went with it. I had flown before, but I could not remember it. This was for me, a great adventure. My sister on the other hand, had already begun getting sick, the beginning of a childhood penchant for motion sickness.

I wish I could have known that it would be the last time I would see my grandparents. I wish there was something I could have done or said that would have made a difference. I don't know what happened to them. I've heard stories, none of them pleasant. Perhaps they paid dearly for getting my sister and I out of the country. I'll never know.

Tuesday, March 16, 2010

When the Only Hope Is a Peaceful Ending

Jane Brody wrote “Jane Brody’s Guide to the Great Beyond,” which deals with death and dying in a more contemporary and personal way. In this article she details some of the story of saying goodbye to her husband of 40 years, after he was diagnosed with metasticized inoperable lung cancer.

The decisions Ms. Brody and her family made regarding her husband's care were humane and loving. My wish is that everyone who is experiencing this terrible scenario is able to provide such a comforting and supportive end for their loved ones. I would have liked Joey to be cared for in this way. It would have been a kindness to allow him to be cared for by providing him a safe and painless place to end his days. Sadly, we were not the ones making those decisions.

A Fatal Diagnosis, Followed by Goodbyes
By JANE E. BRODY
Published: March 15, 2010
This is a very personal story of living gracefully with a fatal diagnosis.

Friday, March 12, 2010

Uncle Lenny Doesn’t Live Here Anymore

This is a moving story about an Uncle who has Alzheimer's. My dad, Oscar had Alzheimer's. It was hard to tell if he understood us, or exactly what was going on inside of him during the last two years of his life. He wasn't a nice guy so a lot of conversations with him were mostly hearing him grunt at whatever you said, or anger. Which essentially is an Alzheimer's type of response. Maybe Oscar just had Alzheimer's his whole life.

Uncle Lenny Doesn’t Live Here Anymore

Sunday, February 21, 2010

Can I Just go to Florida?

Anger wells up in me like one of those big waves that crash on you when you’re swimming. I’ve been on a boogie board when a wave hits me, grabbed me, and turned me over and over smashing me down on the sand until it scraped the bottom with me. That’s what it feels like, this anger. It’s actually a friend. If I didn’t have this anger, I would be sad and I don’t think I could survive that. I want to feel that sand scrape me raw. It’s good right now to feel that anger. It keeps me sane.
_______________________________________________________________

It’s July 2004. My partner and I are sitting in Joey’s living room listening to him talk about what he’s doing to help himself. We know he’s going to die. He tells us it might be a year, but we know that he knows it will be much sooner. I want to jump from my seat and scream, pull my hair out, kick and break things, stick hot forks in my eyes. I want to beat someone up. Instead, I just sit there and nod.

Joey has his own business; he’s a real estate appraiser. Business has been good. He is telling us that it costs him $1500.00 a month to provide health insurance for him and his wife. I know that he is barely able to work anymore and I’m worried. His wife hasn’t worked in years. They have no children. She’s just incapable of holding a job because of her dependence on marijuana. I really want her to be the one who is dying. She’s not dying though. She’s sitting next to Joey now, listening to him.

My sister in law is listening and talking. She tells us that Joey goes on the Web and talks to other liver transplant patients. She says she “doesn’t believe in that.” As if the Web is imaginary or the other people with liver disease don’t really exist? I’m wondering, what does she mean? She doesn’t like Joey to talk to strangers on the “computer.” Ignoring her is getting harder.

Joey starts to tell us how he’s been going to a psychiatrist to help him through his despair. He has also begun visiting a faith healer. As he is saying this I see his wife rolling her eyes and making that trashy, low life money sign with her hand. She is telling us that money is just flying out of the window. I am imagining myself flying through the air at her.  I push her down. Once she’s on the floor I choke and beat her. Then I kick her over and over again until she stops talking. My head shakes, I try to focus on Joey.

Joey continues talking. He wants to go to Port Charlotte, Florida to spend his last few months. He has even found a house he wants to buy. His wife is telling us she won’t go without making sure that everything is “wrapped up”  in Virginia, no matter how long it takes. She is concerned about her furniture and leaving any bills unpaid. She also does not want to live anywhere near my family who lives in Ft Myers. She is worried they might be too close and will visit too often. Joey tells us he won’t go without her and quotes the Book of Ruth.
During this visit I reach a breaking point. I know that I hate Joey’s wife so much that it will be difficult not to sock her in the jaw whenever I see her. This is it. With complete certainty a door has closed in my heart. That woman will never again be a part of my life once Joey is gone. I will wish her dead. It pains me that she is not the one dying. I am not sorry I feel this way. Joey doesn’t deserve to die like this and she doesn’t deserve to live.

Joey lived one more month. He never made it back to Florida. The day he died, I took one last look at his wife. She was Joey’s big mistake. I wasn’t going to add to it. She was out of my life.

Saturday, February 6, 2010

It doesn't snow in La Habana

I do not want this blog to be all about dead people, but, really, there is something that feels so fulfilling in talking about folks who have passed before us. No matter what we say, they cannot be here to refute it or to change it in any way. We are the arbiters of their stories. Dead men really do not tell tales, they can only listen to what we say and ponder as to what it is we mean. Not that I really know that, since I have never been dead. In reality, I have no idea if the folks who are gone from this Earth have any connection to us. I would like to think they do. I would prefer that some of them did, though I would rather than some of them did not.


My dad is one of those people I just hope is not “watching over us.” He was not a nice guy. You know what I mean? Some people are simply not nice. No matter how much we try to cut through their mean exterior, we sometimes only find another penurious layer of small heartedness and a self-serving rapaciousness that is beyond redemption. Yes, my dad was such a person. Throughout my life, my ability to affect my father’s emotional state was non-existent. He was unabashedly uninterested in my life or the life and needs of my siblings.

It is a long and ignoble story, yet it is one that I occasionally have to release from its bounds inside of my head. It is one of those stories that I just tell. Like throwing my hand on the table at a poker game, every so often I tell this story. I often wonder if I tell it because I want to make certain it is real, or if I want to make sure that I can touch its truth. The integrity of this story is irrefutable. The reason I know my story is true is because my siblings and I all know it. We all have a piece of it. We have firsthand knowledge of one or other parts of this story, because in stages, each of us has lived it. We experienced this story in layers, each of us in our own time, with our own set of grievances and painful exposure to its truth.

Where to begin is often my issue. Is a good place to start where my father left my mother with my sister and me in Cuba and came to the US looking for…what? Anything but us. Anyone except my mother and “her” kids? I don’t really know exactly where it starts. It may start at the point where my mother drags my sister and me to the US to try to get my dad back. She finds him, and there we are, just one little un-happy family. Perhaps the opening focus of my story should be when my mother drops my sister and me at my grandmother’s house in Cuba and leaves to chase my father around the East Coast. My mom actually returned to Cuba a year later with a newborn; my brother Joey; Joey is the one who died at forty-eight years old, the one this blog is dedicated to. My grandmother did not feel that she could raise my sister, Joey, and me, so she asked my mom to take Joey back to the US with her. My mom did that, and that is where my story begins in earnest.

After Castro came to power in Cuba, there were many Cubans; my grandparents included, who were supportive of him. They felt that Castro was a far sight better than Batista, and that Castro would bring prosperity and respect to the Cuban nation. My grandfather, a Castro sympathizer was not well appreciated by Castro, and one day my grandfather disappeared. He came back a time later, a changed man, having been tortured and abused by Castro’s band of thugs. My grandmother realizing that the political climate in Cuba had gone from bad to worse knew that she needed to get her granddaughters out of Cuba. It was either leave or we would be indoctrinated into Castro’s minions, like so many of our peers.

My grandmother endured abuse and shame to get my sister and I visas for entry into the US. Her neighbors called her “gusano” (worm). Eventually, we were allowed to leave Cuba. I can still remember my grandmother waving goodbye to my sister and me as we boarded the plane. My last memory of her was seeing tears rolling down her face while she fiercely waved her little white starched hanky.

We arrived in the US and were delivered to my parents at Kennedy airport. I remember the drive up the West Side Highway. The buildings and billboards were so amazing to me. I was freezing cold. I am certain my sister was as well. No one had brought coats for us. It was to be the first of many moments of benign neglect by our parents. I remember wondering who these people were. I had dim memories of my mother, but the man driving the car seemed foreign to me. I have so few memories of my dad; I still cannot place him for years at a time during my entire childhood.

Arriving in New York was the beginning of a lifelong odyssey for my mother of being left by my dad, finding him, and moving us to wherever he was. It was a hopeless exercise in chasing the impossible. When I look back on it now, it was clear that my dad did not want us, and did not want my mother. It has also become quite evident that my parents would have left my sister and I in Cuba for eternity had not my grandmother decided to get us out of the country.

My parents were an odd combination of co-dependence, neglect, and eternal suffering. My mother was the “saint” or “martyr,” while my father was the bad one, and the kids were…what? I don’t really know what we were supposed to be. Perhaps at one point we were insurance so that my dad would stay with my mom. It did not work out that way, which surprised my mom to no end. My parents had no regard for our child like needs and wants. We were on our own.

The relationship, which my parents shared, was an abusive dance of dependence and hatred/love, which is still going on, even after my father’s death. About ten years ago my dad’s health began to fail. My mother took this opportunity to create a theatre of complete dependence for my dad. My dad became dependent on my mom for every single thing he needed to survive. From putting sugar in his coffee to actually stirring it, my mom’s duties never ended. He was mean and nasty to my mom, in private and in public. My mom created scenarios, which would make her seem the victim and elicited sympathy from many people inside and outside of our family. It did not fool me. My parents in many ways have been like con artists their entire lives. Conning others and conning each other. They operated outside of the norm of everyday decency and regard.

The parents I grew up with simultaneously abandoned us, neglected us, disregarded us, and stole any magic that our childhoods might have had. When my father died last Thanksgiving, I wasn’t sure how I would feel. I knew that I had no love for him, at least not in the classic way a child would love a father. Reaching into my heart, I examined my emotional self to see if there was anything there. In the end, there was nothing. No feeling, no emotion, nothing. A big blank. I waited through the nursing home scene. I waited through the death scene. I waited through the funeral, through getting rid of his clothes, through moving my mom out of the house into an apartment, still nothing. It is sad that there was never any redemption in our relationship. The last coherent words I heard him speak were mean and cruel epithets that he hurled at my mother while he was in the hospital. He never changed, he never mellowed, he never once thought of anyone but himself. What can you do with someone like that? I ran away from his crazy-making many years ago. There was no way I would ever go back. Even when he was dying, my father never became real to me. There was never a time when I could say that I felt something for this man. I spent many years refusing to see him. Many more years were spent learning how to live with the fact that my mother had always chosen him over me. None of my siblings or I were ever enough for my mom. My dad was the person she wanted, the person she chose, and the person she cared for, fought for, and yearned for. This is true even today.

We moved my mom into her apartment today. This is the first time in sixty-one years she has not lived with my dad. I feel for her in that way that you are sad for anyone who has lost a partner of so many years. Yet, she is my mother, who aided and abetted my father in disregarding everything my siblings and I yearned for and needed our entire lives. Love is a funny thing. I am quite sure I love my daughter. I know this because I would kill for her. I know this because there is nothing my daughter could ever do that would make me turn away from her. I know this because when I have had a choice to make, my daughter was the winner every time. My parents were essentially strangers who let me live in their house. I owe them no allegiance, and I owe them no support. I am still waiting to feel something. I may be waiting a long time, perhaps forever.

Wednesday, January 27, 2010

Nyuck Nyuck Nyuck

Joey died on August 8, 2004. He was and still is my younger brother. Not as young as my “little” brother Ray, but eight years younger than I am. Coming from an atypical family, my siblings and I were close and dependent on each other. Diana, the oldest sister ( two years older than me) was our savior/protector. She took bullets for all of us. Joey and I were close in a Three Stooges sort of way. We used to bop each other on the head and do un-Godly things when one or the other was not looking; all in the name of fun. I would say that Joey and I did have fun. Our sibling relationship was not serious, it was silly. One night, I remember Joey and I decided to do the Three Stooges slap and bop on each other until we fell asleep. It was hilarious fun, though painful. We were the only ones who appreciated the joke.


Like my sister, I broke my way out of our parentalized childhood by leaving the house at sixteen years old. It was difficult keeping track of Joey and Ray after that. They remained with my distracted, misogynous dad and my hysterical, co-dependent mom. While attempting to disavow my parents, I also disavowed my brothers. It was much later, as an adult that I once again began to reach out and connect with my brothers and sister, however, by then both my brothers had reached the magic age of sixteen when all of my parents’ children turned into rolling stones and tore right through the front door, never fully to return.

Though we were spread all over the map, my siblings and I maintained a connection cemented through shared pain, and the knowledge that what we experienced was a common thread in our lives. We knew that our memories were real and unadulterated because we all had similar stories to tell.

By the time Joey found out, he had contracted Hepatitis C from a pre-1980 blood transfusion, we were both regularly in each other’s lives. I did not understand what it was my brother had. My sister, who is a nurse, seemed to be fatalistic about Joey’s chances of long-term survival, but I did not believe that. Joey was himself during this time; strong, capable, beautiful, funny, and angry. It was impossible to see how Joey could be terminal; it did not make sense.

It took ten years for the disease to crash down on Joey. After many treatments and a botched liver transplant, we learned that Joey’s liver was not only cancerous, but the cancer had metastasized throughout his organs. I was on the way to my daughter’s bridal shower that June of 2004. I knew that Joey was supposed to be having his transplant, and I prayed the whole way to Seattle. When the plane touched down, there was a message from my brother Ray. There would be no transplant. Joey was not going to make it; his life expectancy would be two years at best.

I remember the shower, the wedding dress fitting, and everything else that happened that weekend in Seattle like an underwater film. The filter that allows us to walk through each day was gone. There was only a feeling of unreality and senselessness in all that I did.

From Seattle I flew directly to Washington D.C. where my brother was still hospitalized; getting there just in time to see the liver surgeon in tears telling my family that Joey was not only going to die, but it would be much sooner than we expected. I became so angry and hard. It makes no sense now, but I tap danced outside of his room in the hallway of that hospital. I tapped danced and ran.

Joey died August 8, 2004. He died at home, submitting to his fate little by little. His breath growing slower and slower over a weekend of emotional pain unlike I have ever experienced in my life. The moment Joey died, I ran. I ran out of his door, down the street, and kept running until I could no longer breathe. I wanted to somehow keep as much distant as possible between his death and myself. Perhaps at that moment I wanted to make it not real. If I did not see it, it had not happened.

My daughter was married in Seattle exactly one week after Joey died. I never made it to his funeral because I was in transit to the West Coast. In many ways, it did not matter that I was not there. I was there before he died. I was there to hear his last words. He called me over to him, he could only whisper by then. I thought he was going to ask for something to drink or to tell me something important; not Joey…no, he called me over to call me “Fat Ass,” his endearment to me since we were kids. He also called my partner, Jo to him, held out his index finger, and said, “Phone home.” That was Joey; his last words were a call to our Three Stooges childhood. I am so glad Joey left this world being his sarcastic funny self.

I still regularly wonder where he went. Where do people like Joey go after death? He was anti-religion, though believed in a higher power and a guiding spirit. Where is he now? What is he doing? Perhaps he is slapping some angel on the head saying…woooooo woooooo wooooo nyuck nyuck nyuck.